Before Project 12-04 was born, December 4th has been used as an awareness day and platform to reach others in our community to share about "rare genetic conditions" such as Pallister Killian Syndrome, or PKS. Using this day as a platform has not only created an environment to celebrate those going through this unique journey, but it is also a way for the community to show how much they care, and there becomes a connection that otherwise would not have transpired. Because of 12-04, we are raising awareness for not just PKS, but all the other rare conditions our 12-04 families have been affected by. Below are a few of our events and we hope you take a look! They were all nights of inspiration and hope!
Project 12-04 Holiday Gala
U.S. SiteWork hosted: